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UCL Queen Square Institute of Neurology

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Personalised care for people with Parkinson's Disease Study

The PD-Care study was a programme of research that aimed to evaluate the effectiveness of the “Live Well with Parkinson’s” facilitated self-management toolkit. The aim of developing this toolkit was to enable personalised care for community-living people with Parkinson’s, to reduce disability and preventable hospital admissions and to improve quality of life. The toolkit was developed through co-production and tested in a feasibility study. The effectiveness is being evaluated through a Randomised Controlled Trial. The links below provide more detail on the study, information on the team involved and the published findings from the research so far.
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About the Study

PD-Care was a five-year study programme, funded by the National Institute for Health Research (NIHR) and sponsored by Royal Free London NHS Foundation Trust. The study aimed to develop and evaluate a self-management toolkit to personalise and improve care for people with Parkinson’s Disease (PD) living at home.

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Meet the Team

The study involved a collaboration between two departments within University College London. The Department of Clinical and Movement Neurosciences within UCL Queen Square Institute of Neurology, and Centre for Ageing Population Studies, within the Institute of Epidemiology and Healthcare. The study was led by the Royal Free Hospital London, who worked with researchers at Kings College London, the Homerton, Luton and Dunstable and East Herts NHS Hospital Trusts, and with people affected by Parkinson’s.

Results

Study Findings

Lay summaries and published papers showing the latest results from the toolkit development, feasibility testing and main randomised controlled trial.

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Linked Projects

Many of our team members are working on other projects, that link in with the PD-Care programme of work. Find out more about who they are, what work they are doing and the publications they have produced. 

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This study/project is funded by/supported by the National Institute for Health Research (NIHR) [Programme Grants for Applied Research (Grant Reference Number: RP-PG-1016-20001)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. 

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