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IBM-Net
Dr Matt Parton leads a national research project called IBM-Net, to assess and store data on patients with IBM. This project involves an annual clinical review as well as storage of blood serum and DNA for future studies.
At present, we are looking for patients to enroll in IBM-Net.
International Sporadic Inclusion Body Myositis Genetic Study
Prof. Michael Hanna leads this IBM genetic study.
Other research
Other ongoing research studies include:
- IBM (Novartis) - Dr. Pedro Machado and Prof. Michael Hanna
- Genetic study in myositis- collaboration with Manchester
- MRI scanning of muscles of patients with IBM
- A study of exercise therapy in IBM
- The Natural History of Inclusion Body Myositis
- International Sporadic Inclusion Body Myositis Genetic Study
- Aerobic Training in Neuromuscular Diseases
- A Prospective Natural History Study in Sporadic Inclusion Body Myositis (sIBM)
- Investigating genes in patients with polymyositis and dermatomyositis
- Efficacy and Safety of Bimagrumab/BYM338 at 52 Weeks on Physical Function, Muscle Strength, Mobility in sIBM Patients (RESILIENT)
- An Extension Study of the Efficacy, Safety and Tolerability of BYM338 (Bimagrumab) in Patients With Sporadic Inclusion Body Myositis Who Previously Participated in the Core Study CBYM338B2203