Neuromuscular Rehabilitation Research group (NMRR) started in 2011 under the leadership of Principal Investigator Dr Gita Ramdharry. We are a group of Allied Health Professionals who all contribute to the work of NMRR, either as research students, clinical academics, post-doctoral researchers, research active clinicians or clinical evaluators.
The research activity and outputs of NMRR have been funded by a combination of project grants and personal fellowships from NIHR (National Institute for Health Research), charities, UCL/UCLH Biomedical Research Centre and international funding. We have contributed new knowledge through key observational studies, assessed treatments and measurement tools for trials and clinical practice. The Covid-19 pandemic accelerated our work in virtual and digital measurement and blended interventions. We span across multi-disciplinary teams at the CNMD, working with other Principal Investigators to co-supervise, support and deliver research at the UCL Institute of Neurology and UCL Institute of Child Health. Our collaborative network reaches across the UK and globally.
The group focuses its hard work and research activity on the following mission statement:
"The Neuromuscular Rehabilitation research Group aims to study the impact of living with a neuromuscular disease and trial interventions to maximise peoples' physical abilities, function and wellbeing."
Ultimately, we aim to support people to live well with a neuromuscular condition.
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Meet the team:
Consultant Allied Health Professional in Neuromuscular Diseases
Honorary Associate Professor
Principal Investigator UCL IoN & NMRR lead
Aljwhara Alangary
Doctoral Research Fellow
Jodi Allen
HEE/NIHR Clinical Research Doctoral Fellow
Clinical Specialist Speech & Language Therapist
Magdalena Dudziec BSc MCSP
Doctoral Research Fellow
Clinical Evaluator in Peripheral Nerve Disease
Peter Finnigan MSc PGCert BSc MCSP
Highly Specialist Neuromuscular Physiotherapist - McArdle Disease and other related disorders.
Sarah Holmes BSc MRes MCSP
Clinical Specialist Physiotherapist in Mitochondrial Disease & Channelopathy
Clinical Research Fellow (Kennedy’s Disease)
Clinical Specialist Physiotherapist
NIHR/CAHPR Research Champion, South London
Research Physiotherapist & Clinical Evaluator in Muscle Disease
Aleksandra Pietrusz BSc MCSP
Doctoral Research Fellow
Clinical Evaluator in Muscle Disease
Peer Reviewed Publications:
Skorupinska M, Ramdharry G, Byrne B, Laurá M, Reilly MM. Pregnancy and delivery in patients with Charcot-Marie-Tooth disease and related disorders. Obstet Med. 2023 Jun;16(2):83-87. doi: 10.1177/1753495X221107328. Epub 2022 Jun 16. PMID: 37441662; PMCID: PMC10334032.
Buscemi V, Boaz A, Dawes H, Jaki T, Jones F, Marsden J, Paul L, Playle R, Randell E, Robling M, Rochester L, Busse M, Ramdharry G. Exploring the issues that influence how people with rare neurological conditions engage in physical activity. Disability & Rehabilitation (In press, accepted for publication 23/06/2023)
Lindsay A Wilson, William L Macken, Luke D Perry, Christopher J Record, Katherine R Schon, Rodrigo S S Frezatti, Sharika Raga, Kireshnee Naidu, Özlem Yayıcı Köken, Ipek Polat, Musambo M Kapapa, Natalia Dominik, Stephanie Efthymiou, Heba Morsy, Melissa Nel, Mahmoud R Fassad, Fei Gao, Krutik Patel, Maryke Schoonen, Michelle Bisschoff, Armand Vorster, Hallgeir Jonvik, Ronel Human, Elsa Lubbe, Malebo Nonyane, Seena Vengalil, Saraswati Nashi, Kosha Srivastava, Richard J L F Lemmers, Alisha Reyaz, Rinkle Mishra, Ana Töpf, Christina I Trainor, Elizabeth C Steyn, Amokelani C Mahungu, Patrick J van der Vliet, Ahmet Cevdet Ceylan, A Semra Hiz, Büşranur Çavdarlı, C Nur Semerci Gündüz, Gülay Güleç Ceylan, Madhu Nagappa, Karthik B Tallapaka, Periyasamy Govindaraj, Silvère M van der Maarel, Gayathri Narayanappa, Bevinahalli N Nandeesh, Somwe wa Somwe, David R Bearden, Michelle P Kvalsund, Gita M Ramdharry, Yavuz Oktay, Uluç Yiş, Haluk Topaloğlu, Anna Sarkozy, Enrico Bugiardini, Franclo Henning, Jo M Wilmshurst, Jeannine M Heckmann, Robert McFarland, Robert W Taylor, Izelle Smuts, Francois H van der Westhuizen, Claudia Ferreira da Rosa Sobreira, Pedro J Tomaselli, Wilson Marques, Jr, Rohit Bhatia, Ashwin Dalal, M V Padma Srivastava, Sireesha Yareeda, Atchayaram Nalini, Venugopalan Y Vishnu, Kumarasamy Thangaraj, Volker Straub, Rita Horvath, Patrick F Chinnery, Robert D S Pitceathly, Francesco Muntoni, Henry Houlden, Jana Vandrovcova, Mary M Reilly, Michael G Hanna, Neuromuscular disease genetics in underrepresented populations: increasing data diversity, Brain, 2023;, awad254, https://doi.org/10.1093/brain/awad254
McCourt O, Fisher A, Land J, Ramdharry G, Roberts AL, Bekris G, Yong K. "What I wanted to do was build myself back up and prepare": qualitative findings from the PERCEPT trial of prehabilitation during autologous stem cell transplantation in myeloma. BMC Cancer. 2023 Apr 17;23(1):348. doi: 10.1186/s12885-023-10799-1. PMID: 37069548; PMCID: PMC10107576.
Lindsay N. Alfano, Meredith K. James, Gita M. Ramdharry, Linda P. Lowes, 266th ENMC International Workshop: Remote delivery of clinical care and validation of remote clinical outcome assessments in neuromuscular disorders: A response to COVID-19 and proactive planning for the future. Hoofddorp, The Netherlands, 1–3 April 2022, Neuromuscular Disorders, 33, Issue 4, 2023, 339-348, doi.org/10.1016/j.nmd.2023.02.011.
Male AJ, Holmes SL, Hanna MG, Pitceathly RDS, Ramdharry GM, Kaski D. Development of a diagnostic framework for vestibular causes of dizziness and unsteadiness in patients with multisensory neurological disease: a Delphi consensus. J Neurol. 2023 Feb 26. doi: 10.1007/s00415-023-11640-2. Epub ahead of print. PMID: 36842099.
McCourt O, Fisher A, Ramdharry G, Land J, Roberts AL, Rabin N, Yong K. Exercise prehabilitation for people with myeloma undergoing autologous stem cell transplantation: results from PERCEPT pilot randomised controlled trial. Acta Oncol. 2023 Feb 15:1-10. doi: 10.1080/0284186X.2023.2178326. Epub ahead of print. PMID: 36794394.
Leone E, Davenport S, Robertson C, Laurá M, Skorupinska M, Reilly MM, Ramdharry G. Incidence and risk factors for patellofemoral dislocation in adults with Charcot-Marie-Tooth disease (CMT): an observational study. Physiother Res Int. 2023 Feb 19:e1996. doi: 10.1002/pri.1996.
B. Roy, M. Lucchini, J.B. Lilleker, N.A. Goyal, E. Naddaf, B. Adler, L.N. Alfano, G.A. Malandraki, K.L. (Focht) Garand, D. Mochel, U. Badrising, P.M. Machado, R. Pagkatipunan, G. Ramdharry, L. Wang, M.C.Funaro, J. Schmidt, H. Kushlaf, E. Schiopu, K. Stipancic, N. Goyal, M. d’Alessandro, E. Conticini, B. Cruz-Coble, T.E. Lloyd. Current status of clinical outcome measures in inclusion body myositis: a systematised review. Clinical and Experimental Rheumatology 2023, 41 (2):0370-0378 https://doi.org/10.55563/clinexprheumatol/ifacv3
Allen JE, Cleland J, Smith M. An initial framework for use of ultrasound by speech and language therapists in the UK: Scope of practice, education and governance. Ultrasound. 2023 May;31(2):92-103. doi: 10.1177/1742271X221122562. Epub 2022 Oct 12. PubMed PMID: 37144231; PubMed Central PMCID: PMC10152317.
Lee LE; Kulnik ST; Curran GM; Boaz A; Ramdharry GM. Protocol for a hybrid II study exploring the feasibility of delivering, evaluating, and implementing a self-management programme for people with neuromuscular diseases at a specialist neuromuscular centre. Pilot and Feasibility Studies 2023 Jan 9;9(1):4. doi: 10.1186/s40814-022-01231-9.
Ramsey D, Ramdharry G, Scoto M, Muntoni F, Wallace A. Revised Hammersmith Scale for Spinal Muscular Atrophy: inter and intra-rater reliability and agreement. Plos One 2022 Dec 21;17(12):e0278996. doi: 10.1371/journal.pone.0278996
Bennett E, Holmes S, Koohi N, Islam S, Bancroft M, Male A, Hanna MG, Pitceathly RDS, Kaski D. Self-reported postural symptoms predict vestibular dysfunction and falls in patients with multi-sensory impairment. J Neurol. 2022 May;269(5):2788-2791. doi: 10.1007/s00415-021-10921-y. Epub 2022 Jan 5. PMID: 34984513.
Dawes, J, Barron, DS, Lee, LE. Capturing learning from public involvement with people experiencing homelessness to help shape new physiotherapy research: utilizing a reflective model with an under-served, vulnerable population. Health Expect. 2022; 25: 2203-2212. doi:10.1111/hex.13397
Keh RYS, Lilleker JB, Lavin T, Sive J, D’Sa S, Ramdharry G, Carr A, Lunn MP. Rasch-built Overall Disability Scale for POEMS syndrome (POEMS-RODS). Journal of the Peripheral Nervous System 2022, Dec;27(4):302-310. doi: 10.1111/jns.12516
Narayan S, Pietrusz A, Allen J, DiMarco M, Docherty K, Emery N, Ennis M, Flesher R, Foo W, Freebody J, Gallagher E, Grose N, Harris D, Hewamadduma C, Holmes S, James MK, Maidment L, Mayhew A, Moat D, Moorcroft N, Muni-Lofra R, Nevin K, Quinlivan R, Slimming J, Sodhi J, Stuart D, Julien Y; ANSN. Adult North Star Network (ANSN): Consensus Document for Therapists Working with Adults with Duchenne Muscular Dystrophy (DMD) - Therapy Guidelines. J Neuromuscul Dis. 2022;9(3):365-381. doi: 10.3233/JND-210707. PMID: 35124658.
Ramdharry G and Anderson M. Exercise in myositis: what is important, the prescription or the person? Best Practice & Research Clinical Rheumatology 2022 Jun;36(2):101772. doi: 10.1016/j.berh.2022.101772
McCourt O, Fisher A, Ramdharry G, Roberts AL, Land J, Rabin N, Rowe K, Yong K. Adaptation of the PERCEPT myeloma prehabilitation trial to virtual delivery: changes in response to the COVID-19 pandemic. BMJ Open. 2022 Apr 8;12(4):e059516. doi: 10.1136/bmjopen-2021-059516. PMID: 35396313; PMCID: PMC8995568.
Allen JE, Clunie G, Ma JK, Coffey M, Winiker K, Richmond S, Lowell SY, Volkmer A. Translating Ultrasound into Clinical Practice for the Assessment of Swallowing and Laryngeal Function: A Speech and Language Pathology-Led Consensus Study. Dysphagia. 2022 Dec;37(6):1586-1598. doi: 10.1007/s00455-022-10413-9. Epub 2022 Feb 24. PubMed PMID: 35201387;
Viviers M, Edwards L, Asir M, Hibberd J, Rowe R, Phillips S, Thomas V, Keesing M, Sugar A, Allen J. Enhanced rapid review of the applicability of ultrasound in the assessment of sucking, swallowing and laryngeal function in the paediatric population. Int J Lang Commun Disord. 2022 Mar;57(2):422-440. doi: 10.1111/1460-6984.12695. Epub 2022 Jan 21. Review. PubMed PMID: 35060665.
Matthews E, Holmes S, Fialho D. Skeletal muscle channelopathies: a guide to diagnosis and management. Pract Neurol. 2021 Jun;21(3):196-204. doi: 10.1136/practneurol-2020-002576. Epub 2021 Feb 9. PMID: 33563766.
Ramdharry, G., Buscemi, V., Boaz, A., Dawes, H., Jaki, T., Jones, F., . . . Busse, M. (2021). Proposing a Core Outcome Set for Physical Activity and Exercise Interventions in People With Rare Neurological Conditions. Frontiers in Rehabilitation Sciences, 2. doi:10.3389/fresc.2021.705474
Allen JE, Clunie GM, Winiker K. Ultrasound: an emerging modality for the dysphagia assessment toolkit?. Curr Opin Otolaryngol Head Neck Surg. 2021 Jun 1;29(3):213-218. doi: 10.1097/MOO.0000000000000708. Review. PubMed PMID: 33741822; PubMed Central PMCID: PMC7611059.
Ramdharry, G. M., Wallace, A., Hennis, P., Dewar, E., Dudziec, M., Jones, K., . . . Hanna, M. G. (2021). Cardiopulmonary Exercise Performance and Factors Associated with Aerobic Capacity in Neuromuscular Diseases. Muscle and Nerve. doi:10.1002/mus.27423
Mishra B, Saini M, Doherty CM, Pitceathly RDS, Rajan R, Siddiqi OK, Ramdharry G, Asranna A, Tomaselli PJ, Kermode AG, Bajwa JA, Garg D, Vishnu VY (2021). Use of Twitter in Neurology: Boon or Bane?. Journal of Medical Internet Research, 23(5), e25229. doi:10.2196/25229
Ramdharry, G., Singh, D., Gray, J., Kozyra, D., Skorupinska, M., Reilly, M. M., & Laura, M. (2021). A prospective study on surgical management of foot deformities in Charcot Marie tooth disease. Journal of the Peripheral Nervous System, 26(2), 187-192. doi:10.1111/jns.12437
McCourt, O., Yong, K., Ramdharry, G., & Fisher, A. (2021). Physical Activity During and After Haematological Cancer Treatment: A Cross-Sectional Survey of Haematology Healthcare Professionals in the United Kingdom. Journal of Multidisciplinary Healthcare, 14, 1659-1671. doi:10.2147/JMDH.S295888
Jones, K., Hawke, F., Newman, J., Al Miller, J., Burns, J., Jakovljevic, D. G., . . . Ramdharry, G. (2021). Interventions for promoting physical activity in people with neuromuscular disease. Cochrane Database of Systematic Reviews, (5), 126 pages. doi:10.1002/14651858.CD013544.pub2
Dodzo, W., Grant, R., Forsyth, L., & Ramdharry, G. M. (2020). A randomised controlled feasibility trial of the Graded Repetitive Arm Strengthening Programme delivered to survivors of stroke at home. International Journal of Therapy and Rehabilitation, 27(8). doi:10.12968/ijtr.2017.0081
Ramdharry, G., Bull, K., Jeffcott, R., & Frame, A. (2020). An expert opinion: Rehabilitation options for people with polyneuropathy. Advances in Clinical Neuroscience & Rehabilitation, 19(2), 17-19. doi:10.47795/euni7797
Allen J, Astin R, Smith C, Banks D, Turner C. Expiratory muscle strength training improves measures of pressure generation and cough strength in a patient with myotonic dystrophy type 1. Neuromuscul Disord. 2020 Sep;30(9):750-755. doi: 10.1016/j.nmd.2020.07.003. Epub 2020 Jul 14. PubMed PMID: 32861531.
Busse, M., & Ramdharry, G. (2020). Targeting sedentary behaviour in neurological disease. Practical Neurology, 20(3), 187-188. doi:10.1136/practneurol-2019-002491
Jones, K., Hawke, F., Newman, J., Miller, J. A. L., Burns, J., Jakovljevic, D. G., . . . Ramdharry, G. (2020). Interventions for promoting physical activity in people with neuromuscular disease. Cochrane Database of Systematic Reviews. doi:10.1002/14651858.cd013544
Eagan, J. H., Ramdharry, G., & Smailes, S. T. (2020). Investigating the interrater reliability of a novel functional outcome measure for use in the burns intensive care unit: The Functional Assessment for Burns - Critical Care (FAB-CC). Burns, 46(2), 279-285. doi:10.1016/j.burns.2018.12.004
McCourt, O., Fisher, A., Ramdharry, G., Roberts, A. L., Land, J., Rabin, N., & Yong, K. (2020). PERCEPT myeloma: A protocol for a pilot randomised controlled trial of exercise prehabilitation before and during autologous stem cell transplantation in patients with multiple myeloma. BMJ Open, 10(1). doi:10.1136/bmjopen-2019-033176
Stevenson, V., Farrell, R., Ramdharry, G., Swayne, O., Ward, N., Leary, S., & Holmes, S. (2020). Hospital based rehabilitation services; Rising to the challenge of the COVID-19 pandemic. Advances in Clinical Neuroscience & Rehabilitation, 19(4), 5-7. doi:10.47795/cigb9925
McCaughan, D., Booth, A., Jackson, C., Lalor, S., Ramdharry, G., O'Connor, R. J., . . . McDaid, C. (2019). Orthotic management of instability of the knee related to neuromuscular and central nervous system disorders: qualitative interview study of patient perspectives. BMJ Open, 9(10), 10 pages. doi:10.1136/bmjopen-2019-029313
Murphy AP, Morrow J, Dahlqvist JR, Stojkovic T, Willis TA, Sinclair CDJ, Wastling S, Yousry T, Hanna MS, James MK, Mayhew A, Eagle M, Lee LE, Hogrel JY, Carlier PG, Thornton JS, Vissing J, Hollingsworth KG, Straub V. Natural history of limb girdle muscular dystrophy R9 over 6 years: searching for trial endpoints. Ann Clin Transl Neurol. 2019 May 16;6(6):1033-1045. doi: 10.1002/acn3.774. Erratum in: Ann Clin Transl Neurol. 2019 Jul;6(7):1358. PMID: 31211167; PMCID: PMC6562036
Male, A. J., Ramdharry, G. M., Grant, R., Davies, R. A., & Beith, I. D. (2019). A survey of current management of Benign Paroxysmal Positional Vertigo (BPPV) by physiotherapists' interested in vestibular rehabilitation in the UK. Physiotherapy, 105(3), 307-314. doi:10.1016/j.physio.2018.08.007
Ramdharry, G., Morrow, J., Hudgens, S., Skorupinska, I., Gwathmey, K., Currence, M., . . . Sadjadi, R. (2019). Investigation of the psychometric properties of the inclusion body myositis functional rating scale with rasch analysis (vol 60, pg 161, 2019). Muscle & Nerve, 1 page. doi:10.1002/mus.26661
Wallace, A., Pietrusz, A., Dewar, E., Dudziec, M., Jones, K., Hennis, P., . . . Ramdharry, G. M. (2019). Community exercise is feasible for neuromuscular diseases and can improve aerobic capacity. Neurology. doi:10.1212/WNL.0000000000007265
Holmes, S., Male, A. J., Ramdharry, G., Woodward, C., James, N., Skorupinska, I., . . . Pitceathly, R. D. S. (2018). Vestibular dysfunction: a frequent problem for adults with mitochondrial disease. J Neurol Neurosurg Psychiatry. doi:10.1136/jnnp-2018-319267
Pietrusz A, Scalco RS, Quinlivan R. Resistance Exercise Training in McArdle Disease: Myth or Reality? Case Rep Neurol Med. 2018 Sep 30;2018:9658251. doi: 10.1155/2018/9658251. PMID: 30363996; PMCID: PMC6186374.
Allen JE, O'Leary EL. Considerations for chest clearance and cough augmentation in severe bulbar dysfunction: a case study. Can J Respir Ther. 2018 Fall;54(3):66-70. doi: 10.29390/cjrt-2018-014. Epub 2018 Nov 1. PubMed PMID: 31156327; PubMed Central PMCID: PMC6422109.
Ramdharry GM, Reilly-O'Donnell L, Grant R, Reilly MM. Frequency and circumstances of falls for people with Charcot-Marie-Tooth disease: A cross sectional survey. Physiother Res Int. 2018 Apr;23(2):e1702. doi: 10.1002/pri.1702. Epub 2017 Dec 28. PMID: 29282812.
Laura, M., Singh, D., Ramdharry, G., Morrow, J., Skorupinska, M., Pareyson, D., . . . Reilly, M. M. (2018). PREVALENCE AND ORTHOPEDIC MANAGEMENT OF FOOT AND ANKLE DEFORMITIES IN CHARCOT-MARIE-TOOTH DISEASE. Muscle & Nerve, 57(2), 255-259. doi:10.1002/mus.25724
Ramdharry, G. (2018). Six months of strength training reduces progression of dorsiflexor muscle weakness in children with Charcot-Marie-Tooth disease [commentary]. Journal of Physiotherapy, 64(1), 58. doi:10.1016/j.jphys.2017.10.002
Tzikalagia, T., & Ramdharry, G. (2017). Using the Edinburgh Visual Gait Score to assess gait in children with cerebral palsy: A feasibility evaluation. International Journal of Therapy and Rehabilitation, 24(10), 419-426. doi:10.12968/ijtr.2017.24.10.419
McDaid, C., Fayter, D., Booth, A., O'Connor, J., Rodriguez-Lopez, R., McCaughan, D., . . . Ramdharry, G. (2017). Systematic review of the evidence on orthotic devices for the management of knee instability related to neuromuscular and central nervous system disorders. BMJ OPEN, 7(9), 10 pages. doi:10.1136/bmjopen-2017-015927
Hides, J., Lambrecht, G., Ramdharry, G., Cusack, R., Bloomberg, J., & Stokes, M. (2017). Parallels between astronauts and terrestrial patients - Taking physiotherapy rehabilitation "To infinity and beyond". MUSCULOSKELETAL SCIENCE AND PRACTICE, 27, S32-S37. doi:10.1016/j.msksp.2016.12.008
Ramdharry, G. M., Pollard, A. J., Grant, R., Dewar, E. L., Laura, M., Moore, S. A., . . . Reilly, M. M. (2017). A study of physical activity comparing people with Charcot-Marie-Tooth disease to normal control subjects. DISABILITY AND REHABILITATION, 39(17), 1753-1758. doi:10.1080/09638288.2016.1211180
O'Connor, J., McCaughan, D., McDaid, C., Booth, A., Fayter, D., Rodriguez-Lopez, R., . . . Ramdharry, G. (2016). Orthotic management of instability of the knee related to neuromuscular and central nervous system disorders: systematic review, qualitative study, survey and costing analysis. HEALTH TECHNOLOGY ASSESSMENT, 20(55), 1-+. doi:10.3310/hta20550
Machado PM, Ahmed M, Brady S, Gang Q, Healy E, Morrow JM, Wallace AC, Dewar L, Ramdharry G, Parton M, Holton JL, Houlden H, Greensmith L, Hanna MG.. (2014). Ongoing Developments in Sporadic Inclusion Body Myositis. Current Rheumatology Reports, 16(12), 1-13. doi:10.1007/s11926-014-0477-9
Brouner, J., Ramdharry, G., & Swann, N. (2014). An isokinetic method for inducing a localised fatigue effect in the plantarflexors and dorsiflexors of the ankle. JOURNAL OF ELECTROMYOGRAPHY AND KINESIOLOGY, 24(6), 841-847. doi:10.1016/j.jelekin.2014.08.011
Ramdharry, G. M., Pollard, A., Anderson, C., Laura, M., Murphy, S. M., Dudziec, M., . . . Reilly, M. M. (2014). A pilot study of proximal strength training in Charcot-Marie-Tooth disease. JOURNAL OF THE PERIPHERAL NERVOUS SYSTEM, 19(4), 328-332. doi:10.1111/jns.12100
Hiscock, A., Dewar, L., Parton, M., Machado, P., Hanna, M., & Ramdharry, G. (2014). Frequency and circumstances of falls in people with inclusion body myositis: A questionnaire survey to explore falls management and physiotherapy provision. Physiotherapy (United Kingdom), 100(1), 61-65. doi:10.1016/j.physio.2013.06.002
Ramdharry, G. M., Thornhill, A., Mein, G., Reilly, M. M., & Marsden, J. F. (2012). Exploring the experience of fatigue in people with Charcot-Marie-Tooth disease. NEUROMUSCULAR DISORDERS, 22, S208-S213. doi:10.1016/j.nmd.2012.10.016
Ramdharry, G. M., Pollard, A. J., Marsden, J. F., & Reilly, M. M. (2012). Comparing Gait Performance of People with Charcot-Marie-Tooth Disease Who Do and Do Not Wear Ankle Foot Orthoses. Physiotherapy Research International, 17(4), 191-199. doi:10.1002/pri.531
Hiscock, A., Dewar, L., & Ramdharry, G. (2012). Workshop on physiotherapy for adults with neuromuscular diseases held at the MRC Centre for Neuromuscular Diseases, Queen Square, London, UK on 28th March 2011. Neuromuscular Disorders, 22(11), 1029-1031. doi:10.1016/j.nmd.2012.05.003
Ramdharry, G. M., Day, B. L., Reilly, M. M., & Marsden, J. F. (2012). Foot drop splints improve proximal as well as distal leg control during gait in Charcot-Marie-Tooth disease. Muscle & Nerve, 46(4), 512-519. doi:10.1002/mus.23348
Arthur-Farraj PJ, Murphy SM, Laura M, Lunn MP, Manji H, Blake J, Ramdharry G, Fox Z, Reilly MM (2012). Hand weakness in Charcot-Marie-Tooth disease 1X. NEUROMUSCULAR DISORDERS, 22(7), 622-626. doi:10.1016/j.nmd.2012.02.008
Marsden, J., Ramdharry, G., Stevenson, V., & Thompson, A. (2012). Muscle paresis and passive stiffness: Key determinants in limiting function in Hereditary and Sporadic Spastic Paraparesis. GAIT & POSTURE, 35(2), 266-271. doi:10.1016/j.gaitpost.2011.09.018
Current awards:
UCL/UCLH BRC Neuroscience Programme Board [Dr Gita Ramdharry]
UCL/UCLH BRC Neuroscience Programme Board [Sarah Holmes]
Kennedy’s Disease UK: Clinical research Fellowship [Louie Lee]
Trellis Arbor (UCL Engagement). 2023. How to Swim on Land [Co-PIs:Louie Lee & Caroline Wright)
HEE/NIHR Integrated Clinical Academic Programme Clinical Doctoral Research Fellowship. A Multidimensional Profile of Dysphagia in Myotonic Dystrophy Type 1 (DM1). (Award ID: NIHR302112) [PI and Doctoral Fellow: Jodi Allen]
UCL/UCLH BRC PPI Bursary Fund: Co-designing a strategy to engage people with rare neurological diseases from racially minoritized backgrounds in research [PI: Dr Gita Ramdharry]
The Royal Embassy of Saudi Arabia Cultural Bureau in The UK & Ireland: International Doctoral Fellowship. Exploring muscle structure, function and gait patterns in people with Distal Hereditary Motor Neuropathy: natural history and the effect of rehabilitation interventions [Doctoral fellow: Aljwhara Alangary, PI & Primary Supervisor: Dr Gita Ramdharry]
Muscular Dystrophy UK. Evaluation of feasibility, effect and implementation requirements of a self-management intervention for people with neuromuscular diseases. (grant reference: 18GRO-PS48-0122) [Doctoral Fellow: Louie Lee, PI & Primary Supervisor: Dr Gita Ramdharry]
Muscular Dystrophy UK: Understanding the cause of falls and imbalance in myotonic dystrophy type 1. [Co-applicant: Ramdharry, PI: Dr Diego Kaski]
Trellis 3 (UCL Engagement). 2021. The accessible playground project [Co-PIs: Louie Lee and Shirin Naveed]
Beacon Bursaries (UCL Engagement). 2022. Getting the balance right [PI: Louie Lee]
NIH Inherited Neuropathy Rare Disease Consortium (RDCRC) 2U54NS065712-12. $5million, $1,199 million to UCL (1 September 2019- 30 June 2024). [Clinical Evaluator Magdalena Dudziec, Co-applicant: Dr Gita Ramdharry; UCL PI: Prof Mary Reilly
Lily Foundation Research Grant: The Vestibular Dysfunction Assessment Framework for Adults and Adolescents with Mitochondrial Disease: does this tool accurately direct the identification and investigation of individuals reporting symptoms of dizziness and/or unsteadiness, in order to improve management and outcomes? [Co-applicants Sarah Holmes & Dr Gita Ramdharry; PI: Prof Robert Pitceathly, UCL]
Previous awards:
NIHR Program Development Grant. Physical Activity in Rare Conditions. Co-Chief Investigator with Prof Monica Busse. (grant reference RP-DG-0517-10002) [Co-CI: Dr Gita Ramdharry]
UCLH Charity Bridges Self-management intervention for people with neuromuscular diseases. Principle applicant. [PI: Dr Gita Ramdharry]
Kingston University, Principle Investigator: Effect of plantar vibration on balance for people with inherited neuropathy [PI: Dr Gita Ramdharry]
Charcot Marie Tooth UK charity, Principle Investigator: Home based balance training for people with Charcot Marie Tooth Diseases: A feasibility study. [PI: Dr Gita Ramdharry]
NIHR Research for Patient Benefit grant based at UCLH NHS trust. Principle Investigator. Aerobic training in neuromuscular diseases. (grant reference PB-PG 0711-25151) [PI: Dr Gita Ramdharry]
NIHR for the CAT Clinical Lectureship for nurses,midwives and AHPs. Five-year, part time fellowship for study titled: Characterising the nature of falls and balance impairments in people with neuromuscular diseases (grant reference CAT CL09) [PI: Dr Gita Ramdharry]
Top up funding to NIHR CAT Clinical Lectureship for a study: Rasch analysis of functional measurement for people with neuromuscular diseases. [PI: Dr Gita Ramdharry]