Public Engagement

The Dementia Reseach Centre is committed to building awareness of dementia, its diversity and its human implications, among our fellow clinicians and scientists; and to improving inclusivity and communication in dementia research and care for the wider public, in particular members of under-served communities. 

Examples of our activities include: 

• Co-production of research outputs, notably including the recent symptom-led staging for primary progressive aphasia, the first such staging for these diseases, led by Chris Hardy and based on international caregiver online surveys about their lived experience of the illness: https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.13415 
• Regular media appearances showcasing our work – including podcasts from The Dementia Researcher, The Royal College of Speech and Language Therapists, and BBG CrowdScience; and coverage by BBC Radio 4 and Radio 3, BBC Breakfast, LBC Radio, The Guardian, The Times, The New Yorker and The Wall Street Journal. 
• Leadership of meetings, webinars, recitals and other events for the national Primary Progressive Aphasia (PPA) Support Group – under the aegis of Rare Dementia Support
• Dementia awareness activities involving the UK Chinese communities, led by Dr Jess Jiang – focused on increasing dementia awareness and inclusivity in research for this unique but minoritised demographic. Jess currently co-organises the Chinese Dementia Carer support group meetings.