Rare Dementia (RD) Team
- Joshua Stott (Principal Investigator)
- Emilie Brotherhood (Co-Principal Investigator)
- Nick Fox (Co-Investigator)
- Jon Rohrer (Co-Investigator)
- Seb Crutch (Co-Investigator)
- Natalie Ryan (Collaborator)
- Aimee Spector (Co-Investigator)
- Aida Suarez Gonzalez (Carer Trial Lead)
- Emma Harding (At-genetic-risk Trial Lead)
- Amber John (MODIFY researcher)
- Céline El Baou (RD-TALK Research Assistant)
- Ollie Hayes (RD-TALK Research Assistant)
- Caroline Fearn (RD-TALK Research Assistant)
Two PPI-leads with personal experience of rarer dementias helped develop our proposal. They and all other patients/public involved will ensure relevance to people with rare dementias by shaping the project throughout (e.g., helping design digital programmes, develop surveys and share findings):
- Nikki Zimmermann (Co-Public & Patient Involvement Lead)
- Val Mansfield (Co-Public & Patient Involvement Lead)
The RD-TALK project is a collaboration between researchers based at UCL and UCLH and:
- Bangor University: Zoe Hoare, Andrew Brand, Steffan Hughes
- Swansea University: Deb Fitzsimmons, Andrea Tales, Katherine Cullen
- King’s College London: Monica Leverton