Rare Dementia (RD) Team

Joshua Stott (Principal Investigator)
Emilie Brotherhood (Co-Principal Investigator)
Nick Fox (Co-Investigator)
Jon Rohrer (Co-Investigator)
Seb Crutch (Co-Investigator)
Natalie Ryan (Collaborator)
Aimee Spector (Co-Investigator)
Aida Suarez Gonzalez (Carer Trial Lead)
Emma Harding (At-genetic-risk Trial Lead)
Amber John (MODIFY researcher)
Céline El Baou (RD-TALK Research Assistant)
Ollie Hayes (RD-TALK Research Assistant)
Caroline Fearn (RD-TALK Research Assistant)

Two PPI-leads with personal experience of rarer dementias helped develop our proposal. They and all other patients/public involved will ensure relevance to people with rare dementias by shaping the project throughout (e.g., helping design digital programmes, develop surveys and share findings): 

Nikki Zimmermann (Co-Public & Patient Involvement Lead)
Val Mansfield (Co-Public & Patient Involvement Lead)

The RD-TALK project is a collaboration between researchers based at UCL and UCLH and:

Bangor University: Zoe Hoare, Andrew Brand, Steffan Hughes
Swansea University: Deb Fitzsimmons, Andrea Tales, Katherine Cullen
King’s College London: Monica Leverton